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Master's Dissertation
DOI
10.11606/D.7.2006.tde-22012007-093227
Document
Author
Full name
Ana Marcia Chiaradia Mendes
E-mail
Institute/School/College
Knowledge Area
Date of Defense
Published
São Paulo, 2006
Supervisor
Committee
Bousso, Regina Szylit (President)
Angelo, Margareth
Pettengill, Myriam Aparecida Mandetta
Title in Portuguese
Não podendo viver como antes: a dinâmica familiar na experiência do transplante hepático da criança
Keywords in Portuguese
Enfermagem da família
Enfermagem pediátrica
Relações familiares
Transplante de fígado
Abstract in Portuguese
Este trabalho teve como objetivos compreender a dinâmica familiar na experiência do transplante hepático pediátrico, bem como identificar as demandas e recursos da família. Utilizou-se como referencial teórico o Interacionismo Simbólico e como referencial metodológico a Teoria Fundamentada nos Dados. A análise comparativa dos dados possibilitou desvendar o significado da experiência da família com uma criança na situação de transplante hepático. Foi possível identificar dois fenômenos que compõem esta experiência: TENDO A VIDA CONTROLADA PELO TRANSPLANTE, que representa a vulnerabilidade da família ao vivenciar as incertezas e o medo constantes no decorrer da experiência de doença da criança; e LUTANDO PARA RESGATAR A AUTONOMIA, que consiste no movimento de reação da família diante do primeiro fenômeno, adaptando-se continuamente para enfrentar o estresse e sofrimento desencadeados pela situação de doença. A articulação desses fenômenos permitiu identificar a categoria central NÃO PODENDO VIVER COMO ANTES, a partir da qual propõe-se um modelo teórico explicativo da experiência
Title in English
Not being able to live like before: the family dynamics during pediatric liver transplantation experience
Keywords in English
Family nursing
Family relationships
Liver transplant
Pediatric nursing
Abstract in English
The aims of this study were to understand the family dynamics during the pediatric liver transplantation experience, and to identify the demands and resources of the family. The study used the Symbolic Interactionism as a theoretical reference and the Grouded Theory Methodology. The comparative anaylisis of the data enabled to unfold the meaning of the experience of the family with a child living the liver transplantation experience. Two phenomena were identified: HAVING LIFE UNDER TRANSPLANTATION´S CONTROL represents the vulnerability of the family living with uncertainty and fear across the child´s illness experience; and STRUGGLING TO RESCUE THEIR AUTONOMY is the reaction of the family when exposed to the first phenomenon, and consists on a continuous adaptation to face all the suffering and stress triggered by the illness situation. The relationship of these two phenomena allowed the identification of the central category named NOT BEING ABLE TO LIVE LIKE BEFORE based on which it was possible to propose a theoretical model to explain the experience
 
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Ana_Marcia.pdf (2.24 Mbytes)
Publishing Date
2007-02-01
 
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