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Master's Dissertation
DOI
https://doi.org/10.11606/D.47.2008.tde-01062009-102411
Document
Author
Full name
Juliana Peixoto Salgueiro
E-mail
Institute/School/College
Knowledge Area
Date of Defense
Published
São Paulo, 2008
Supervisor
Committee
Kovacs, Maria Julia (President)
Alves, Elaine Gomes dos Reis
Goldfarb, Delia Maria Catullo de
Title in Portuguese
Descrição e compreensão dos processos de perdas e luta vivenciados por uma pessoa com Esclerose Lateral Amiotrófica
Keywords in Portuguese
Esclerose amiotrófica lateral
Luto
Morte
Programa de atendimento domicilar
Velhice
Abstract in Portuguese
O presente trabalho teve como objetivo geral descrever e analisar os processos de luto e perdas progressivas, vividos por uma pessoa idosa com Esclerose Lateral Amiotrófica (ELA), consciente destas perdas. Foi realizada uma pesquisa qualitativa, sob o enfoque fenomenológico, a partir de um estudo de caso. Como dados de análise, foram utilizados os relatos de sessões de psicoterapia domiciliar, com o consentimento livre e esclarecido da participante. Por meio desse material, foram selecionados os relatos em que se observavam a temática perda em decorrência da doença. Esses relatos compuseram quatro unidades de significado: Os Movimentos, A Fala, A Segurança e A Independência, caracterizadas pelas perdas mais significativas vividas pela participante durante o processo evolutivo da doença. As duas primeiras unidades estão relacionadas diretamente à doença, uma vez que figuram como características da ELA. As perdas da segurança e da independência estão presentes na maioria das situações de adoecimento. Sobre a vivência descrita nesse trabalho, destacam-se o vínculo familiar, o cuidador principal, a religião e o atendimento domiciliar como fatores que contribuem para o alívio do sofrimento da pessoa com ELA. Com relação à atuação do psicólogo, destacam-se, entre outras ações, a busca de recursos alternativos ao paciente diante das sucessivas perdas, considerando suas idiossincracias e necessidades específicas. A aproximação e o vínculo afetivo entre o profissional e o paciente, bem como o respeito aos seus valores e a sua história de vida são fatores fundamentais para a obtenção desses recursos. Além disso, o psicólogo deve oferecer ajuda e amparo aos familiares que também podem adoecer, necessitando de carinho e atenção profissional. Além da psicoterapia pessoal, para que essa experiência de atendimento tenha resultados positivos e satisfatórios para o estudante, para o profissional e, principalmente, para o paciente e seus familiares, são fundamentais os estudos sobre a morte e o morrer, as supervisões dos casos atendidos, o compartilhamento das vivências
Title in English
Describing and understanding the losses and mourning processes experienced by a person with Amyotrophic Lateral Sclerosis
Keywords in English
Amyotrophic Lateral Sclerosis
Death
Grief
Home attending program
Old age
Abstract in English
The general objective from this work is to describe and analyze the mourning and progressive losses processes experienced by an elder person with Amyotrophic Lateral Sclerosis (ALS), provided that such person was aware of these losses. Starting from a case study, a qualitative research has been conducted focused on phenomenological aspects. Data from home psychotherapy sessions reports were used, and the participant has consented this usage in a free and informed way. Through this material, a selection process has separated the reports in which the loss theme has been mentioned as a consequence of the disease. These reports have formed four meaning units: Movements, Speech, Safety and Independence, characterized by the most significant losses experienced by the participant during the diseases evolutionary process. The first two units are directly related to the disease, as they are listed as ALS characteristics. Safety and independence issues are experienced by most of the people affected by the disease. Regarding the experience described in this work, its possible to list the family support, the main caretaker, the religion and the home attention as the main factors which may help the person to ease the sufferings caused by ALS. Regarding the psychologist aid, the most important aspect is to seek alternative resources for the patient to help him/her to deal with successive losses, considering the specific idiosyncrasies and needs. The approximation and the emotional connection between the professional and the patient, as well as the respect to the patients values and life story, are vital factors to obtain these resources. Besides, the psychologist shall offer help and support to the family members who are also subject to getting sick. They may also need professional care. Besides the personal psychotherapy, for this attention experience to be successful regarding the student, the professional and specially the patients and their families, the following aspects are vital: studies about death and losses, the supervisions on specific cases, the sharing of experiences and the knowledge about the physical and emotional aspects connected to the disease.
 
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salgueiro_me.pdf (1.18 Mbytes)
Publishing Date
2009-09-02
 
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